ADDIRC and Emotion Dysregulation
Dr. Carla Mazefsky, PhD – University of Pittsburgh
Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC)
The Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC), founded in 2011, is a collaboration of specialized child psychiatry hospital units, including Western Psychiatric Institute and Clinic’s John Merck Inpatient Program that serve children and adolescents with autism and developmental disorders. The primary goal of the ADDIRC is to develop a comprehensive registry of clinical and biological data on severely affected children and adolescents with autism called the Autism Inpatient Collection (AIC). The researchers plan to look at the dimensions of expressive language ability, emotional regulation, psychiatric co-morbidity, aggression, self-injurious behavior and intelligence, and to examine the relationships among these critical factors. Under Dr. Mazefsky’s direction, the Pittsburgh site is leading an investigation of the association between emotion dysregulation and psychophysiological biomarkers. Eligibility for enrollment into the study is based on admission into one of the six inpatient units that makes up the AIC.
For more information about the sites and recent publications and presentations from ADDIRC, see Autism & Developmental Disorders Inpatient Research Collaborative (ADDIRC).
For information and questions pertaining to the Pittsburgh site/Western Psychiatric Institute and Clinic (WPIC), contact 412-334-1356.
Emotion Dysregulation Inventory (EDI)
Problems with emotional control and emotional distress in autism spectrum disorders (ASD) are common and have a significant negative impact on daily life. Treatment options for these problems are limited in part because we lack validated measures of emotion dysregulation for ASD. Most measures of emotional concerns use language that does not apply to individuals with ASD who are non-verbal or minimally verbal (e.g., “complains about, ” “worries about”) and they fail to cover the full range of presenting symptoms. The overall objective of this project is to develop and validate the Emotion Dysregulation Inventory (EDI), a new, sensitive outcome measure suitable for use across the lifespan and spectrum of ASD severity and verbal ability. Although the primary goal is related to measure development, this study will also produce the largest existing data set of symptoms of emotion dysregulation in ASD, which will provide an opportunity to better understand emotion dysregulation in ASD. Improved understanding of emotion dysregulation in ASD will clarify treatment needs, allowing for more refined clinical trials.
- EDI Young Child-(EDI-YC)-Assessment study to create a measure of emotion regulation for parents of children ages 2-5
- EDI Self-Report (EDI-SR)-Assessment study to create a self-report that measures emotion regulation for ages 12 and older
For more information, contact 412-246-5485 or firstname.lastname@example.org